Nine-year-old Erin D'Arcy, from Long Itchington, was born with chromosomal syndrome Trisomy 9p and Léri-Weill dyschondrosteosis - a rare genetic condition which affects bone growth.
As a result, she has other health issues, including heart conditions, and is unable to speak and
can only walk a few steps at a time.
Erin is able to get out and about in an off-road buggy which was bought by her parents in 2019, however it needed some improvements to ensure the family can enjoy their days out together.
The family applied to the Wigley Community Fund and were handed a £1,267 grant to buy buggy accessories including beach wheels and a bike trailer; alongside a new iPad and specialist iPad holder to help keep Erin entertained during the long periods of time that she spends in her buggy.
The grant has opened up many more possibilities for Erin to enjoy days out with mum and dad Suzanne and Simon, and younger sister Edith.
Suzanne said: “Erin faces many battles every day, however she remains upbeat, mischievous and happy, and continues to defy the odds.
“There is some financial support available to us, but we have to self-fund most of the things that improve Erin’s quality of life, so the grant from the Wigley Community Fund will make a big difference and we are all very grateful.”